The Association of Genetic Support of Australasia - Support Group

Bowel Group for Kids Inc

Tue, 06 Nov 2007 21:16:11 -0500

Contact:
Bowel Group for Kids Inc

Email:
eunice@bgk.org.au

Website:
www.bgk.org.au

Details:

Bowel Group for Kids
PO Box 40
Oakdale
NSW 2570
Phone: (02) 4659 6186 Fax: (02) 4659 6381

Lymphangioleimymomatosis

Mon, 26 May 2008 21:43:13 -0400

Contact:
Tamar Nissen

Email:
admin@lam.org.au

Website:
www.lam.org.au

Details:

Lymphangioleiomyomatosis Australia

Bardet Biedl Society

Tue, 06 Nov 2007 21:10:03 -0500

Contact:
Kathryn Murphy

Email:
bbs.australia@yahoo.com.au

Details:

Bardet-Biedl Society
Kathryn Murphy between 11 am and 2.30 pm
(07) 3279 0763

Kidney Support Network of QLD

Tue, 06 Nov 2007 21:08:52 -0500

Contact:
Kathryn Murphy

Email:
office@kidneysupport.org.au

Details:

Kidney Support Network of QLD
PO Box 16
The Gap
QLD 4061

phone (07) 3300 0906 fax (07) 3300 0905

Please contact AGSA for further details

Sat, 04 Aug 2007 21:22:18 -0400

Contact:
Dianne Petrie

Email:
info@agsa-geneticsupport.org.au

Website:
http://www.agsa-geneticsupport.org.au/

Details:

66 Albion Street
Surry Hills
New South Wales 2010
Australia

Telephone: +61 2 9211 1462
Fax: +61 2 9211 8077

Stargardts Disease

Tue, 07 Nov 2006 20:29:44 -0500

Contact:
Vaughan Hillier

Website:
www.stargardts-au.org

Details:

A website to provide help and support for people with the genetic condition of Stargardt's Disease

Facial Paralysis / Moebius Syndrome

Tue, 25 Oct 2005 18:01:22 -0400

Contact:
Karin Thompson

Email:
kthompson5@optusnet.com.au

Website:
http://groups.msn.com/kidswithfacialparalysis/

Sudden Arrhythmia Death Syndromes (SADS) Foundation

Tue, 18 Oct 2005 08:15:31 -0400

Contact:
Julie Foley

Email:
sadsau@optushome.com.au

Details:

VIC Branch
P.O.Box 19
Noble Park VIC

(03) 9798 5781

Syndromes Without A Name (SWAN)

Tue, 02 Aug 2005 06:29:37 -0400

Email:
swanaus@optusnet.com.au

Website:
http://members.optusnet.com.au/~swanaus

Details:

PO Box 3302
Norwood SA 5067

Ph: 043 99 00 272

Batten Disease Support & Research Association

Sun, 03 Jul 2005 01:00:53 -0400

Email:
harry@partridge.com.au

Website:
www.battens.org.au

Australian Sotos Syndrome Support Group

Sun, 03 Jul 2005 00:55:33 -0400

Email:
sotosdownunder@yahoo.com.au

Details:

Alt Email: rdhope@bigpond.com

Ph: 02 4773 3083

Australian Huntington's Disease Association (NSW) Inc.

Sun, 03 Jul 2005 00:39:18 -0400

Email:
enquiries@ahdansw.asn.au

Website:
http://www.ahdansw.asn.au/

Aniridia Network

Sun, 03 Jul 2005 00:33:13 -0400

Email:
hannah@aniridia-network.net

Details:

PO Box 6444
Colchester CO 3XU
UK

Williams Syndrome Family Support Group (Vic) Inc

Thu, 30 Jun 2005 03:21:01 -0400

Contact:
Janine Wan

Website:
http://home.vicnet.net.au/~wsfsg/

Details:

Vic: (03) 9859-4450

NSW: AGSA (02) 9211 1462

Turner Syndrome Association of Australia Ltd

Thu, 30 Jun 2005 03:17:32 -0400

Website:
www.turnersyndrome.org.au

Details:

(02) 9807 3565