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Genetic Conditions and Support Groups

Please note that this is a list of both support groups and genetic conditions. We have people on our Contact Register who are looking for other people affected by the same condition. In many cases, AGSA is the initial point of contact.

If you cannot find your condition here, or you would like to add a support group to the list, please contact AGSA directly. If you know of a change of contact details for a support group listed here, please contact AGSA so that we can update the website. Please note that some support groups are listed with the prefix 'Australian'.

You may also want to try searching the site using the search option (top right of the screen).

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Upcoming Events

11th International VHL (Von Hippel-Lindau Syndrome) Symposium
Thursday October 23, 8:00 AM - 3:00 PM
5th Annual World Orphan Drug Congress
Wednesday November 12, 8:00 AM - 5:00 PM
International Williams Syndrome Conference, Budapest
Friday November 21, 8:00 AM - 3:00 PM

Contact Us

Phone:
+61 2 9211 1462

Fax:
+61 2 9211 8077

Address:
66 Albion Street, Surry Hills
NSW 2010 Australia

Email:
info@agsa-geneticsupport.org.au

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