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    Support for those affected directly or indirectly by genetic conditions/rare diseases throughout Australasia

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    Support for those affected directly or indirectly by genetic conditions/rare diseases throughout Australasia

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    Support for those affected directly or indirectly by genetic conditions/rare diseases throughout Australasia

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    Making the right connections since 1988

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    Making the right connections since 1988

The Association of Genetic Support of Australasia facilitates support for those affected directly or indirectly by genetic conditions/rare diseases throughout Australasia.

AGSA helps supports familiesWe offer a range of support options such as seminars, sibling workshops, telegroup counselling and family days to facilitate contact with others. AGSA is recognised as a peak body in patient support and collaborates with similar organisations nationally and internationally, AGSA is currently the Acting President of the International Genetic Alliance representing 16 countries around the world.

We have a rare disease register representing over 1200 rare conditions to facilitate contact with others with the same or similar condition. We also have contact information for active support groups.

If you would like further information, please phone us on: +61 2 9211 1462 or use our contact form here.

 

1st International Meeting of People With Acromelic Dysplasias

Written by AGSA Administrator on .

The Association of Small Statured People (Paris) is organising in partnership with Professor Valerie Cormier-Daire Hopital Necker's, the First International Meeting of People with Acromelic Dysplasias.

When: 29th November 2014

Time: 9:00am - 5:00pm

Venue: Platforme Maladies Rares, Hospital Broussais - Salle Petunia, 96 rue Didot 75014 Paris

To obtain the program and registration form please conact Danièle Hugues at This email address is being protected from spambots. You need JavaScript enabled to view it. or visit http://www.appt.asso.fr/ 

programme

Patient Innovation Awards 2015

Written by AGSA Administrator on .

Patient Innovation is proud to announce the Patient Innovation Awards! Have you developed a solution, treatment or device that helped improve your health or the health of someone else? By sharing it with the Patient Innovation community you help others and qualify to win our awards. Participate until October 22, 2014!

patient innovation

Charcot-Marie-Tooth Awareness Weekend

Written by AGSA Administrator on .

CMT AWARENESS WEEKEND OCTOBER 11th and 12th, 2014

Venue: Building B26, Concord Medical Education Centre, entrance Gate 3, Hospital Rd., Concord Hospital, CONCORD NSW

Time: Saturday 11th: AGM and Mix and Mingle and Open Forum: 2pm to 5pm

Sunday 12th: Awareness Seminar: 9.00am to 3.30pm.

Topics include:
Professor Garth Nicholson – CMT Research
Professor Joshua Burns – CMT Management
Lyndal Douglas - Genetic Counselling
Dr Andrew Wines - CMT Surgery
Lois Tonkin – Principles of Pain Management
A Posture and Balance Workshop
CMTAA Research Grant
Presentations
Interviews with people with CMT
Q and A session.

Cost: Saturday 11th: AGM followed by Mix and Mingle and Open Forum (including light refreshments): FREE

Cost: Sunday 12th: Awareness Day Seminar: $30 per person, $10 per child (under 18 years). $70 families(Mum, Dad and their immediate family children). This includes an attendee kit, morning tea, lunch and light refreshments.

Parking is conveniently available in the hospital car park opposite the entrance to the Concord Medical Education Centre. Concession parking cards will be available when registering to enable you to park all day for $5 which is payable when exiting the car park. Disabled parking is available in front of the Concord Medical Education Centre.

Please register your attendance through the Seminar RSVP link at the end of the Sydney Awareness Day Seminar article on the CMTAA website, by filling out the section below and sending back to the office address above or by emailing or phoning the National Office on 02 9767 5105 by October 4th 2014 together with your attendance fee. Alternatively, please call our National Office on 02- 9767 5105 to register your attendance and pay on the day.

A Certificate of Attendance for professional development will be available if required.

Sibs Camp 2014

Written by AGSA Administrator on .

CatholicCare Sibs Camp 2014

Do you have a brother or sister with a disability ?
Are you aged between 8 and 16 years old?
Are you up for having fun?

Join us for a great weekend away at Mowbray Park Farm Stay!

We will be canoeing, horse riding, whip cracking, cow milking, bush walking, sitting around the camp fire, making billy tea & damper, doing archery, playing tennis, feeding farm animals and having tractor rides.


When: Friday, 17 October—Sunday, 19 October 2014

Where: Mowbray Park Farm, 745 Barkers Lodge Road, Mowbray Park NSW 2571

Cost: $50 per child
(includes all activities, accommodation, meals, and transport)

CLICK HERE to download the Camp Enrolment Pack
CLICK HERE to download the Waiver Form
CLICK HERE to download the Packing List

Bookings are essential as places are limited.
Please contact Kath Walsh on (02) 4254 9332 or 0428 638 899
or This email address is being protected from spambots. You need JavaScript enabled to view it.

About AGSA

agsa-about-us

AGSA will endeavour to facilitate contact with another family/individual affected by the same, or similar condition, and/or provide information about an overseas support group.

AGSA has been Making the Right Connections since 1988.

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Genetic Conditions

agsa-genetic-conditions

We have contact and support group details for hundreds of genetic conditions in our database.

If you cannot find your condition here, or you would like to add a support group to the list, please contact AGSA directly. If you know of a change of contact details for a support group listed here, please contact AGSA so that we can update the website.

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Contact Us

agsa-contact-us

If you have any questions regarding genetic conditions or support groups, please do not hesitate to contact our office at the following address:

66 Albion Street
Surry Hills NSW 2010
Australia

You can also contact us by filling out our online form located here.

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Upcoming Events

5th Annual World Orphan Drug Congress
Wednesday November 12, 8:00 AM - 5:00 PM
International Williams Syndrome Conference, Budapest
Friday November 21, 8:00 AM - 3:00 PM

Contact Us

Phone:
+61 2 9211 1462

Fax:
+61 2 9211 8077

Address:
66 Albion Street, Surry Hills
NSW 2010 Australia

Email:
info@agsa-geneticsupport.org.au

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