AGSA
AGSA is a network of people who are affected by genetic conditions, either directly or indirectly. Our job here is to make sure that you have someone to talk to, and you have other places and people we can put you in contact with to make your journey a little easier.
We have built up a contact register with over 850 genetic conditions plus 250 rare chromosome abnormalities and details of support groups, and we are meeting new people every week who are starting their own new connections.
Please contact us during the week on 02 9211 1462, or use our contact form here.
Update: 10th September, 2011
11th Annual Information Day
For those living with BRCA1/2 gene faults and
their families/support people
9th October
Flyers and invitations is below:
Flyer & Invitation - BRCA1/2 Day Invite
Update: 4th September, 2011
Broken Hill Seminar & Sibling Workshop
17th & 18th September
Flyers and invitations for the Broken Hill Caring for the Carer Seminar and Siblings Workshop are below:
Flyer & Invitation - Caring for the Carer Seminar, 17th September Flyer & Invitation - Siblings Workshop, 18th September
Update: 8th August, 2011
Genetic Awareness Week
Official Launch - September 5th
You are invited to the Official Launch of AGSA’s 18th GENETIC AWARENESS WEEK.
Guest Speakers:
Simon McKeon - 2011 Australian of the Year. Executive Chairman of Macquarie Group’s Melbourne office. Chairman of CSIRO and Business for Millennium Development. Director of VisionFund, World Vision International’s microcredit arm, Global Poverty Project and Red Dust Role Models.
Jenny Rollo OAM - President, Ryde Area Supported Accommodation for Intellectually Disabled (RASAID), President Cornelia de Lange (CdLS) Association Australia
Dr Peter Whiteman – Music Educator, Institute of Early Childhood
Update: 15th July, 2011
Charcot-Marie-Tooth Association Australia
As members of the CMT Family the Awareness Day Seminar provides the opportunity for us to meet together to hear the latest from leading researchers and developments regarding what is available to help us manage our situation. This year we have a presentation about Preimplantation Genetic Diagnosis (PGD) options and most importantly the opportunity to speak with fellow CMT Family members.
Update: 21st June, 2011
Ryde Area Supported Accomodation (RASAID) in the news
From Northern District Times:
"NORTHERN district parents who care for a disabled adult child popped champagne corks last week after seven years of riding a “rollercoaster of hope and despair”.
Ageing members of the Ryde Area Supported Accommodation for Intellectually Disabled (RASAID) were worried about who would look after their child once they died.
But now their wish for suitable supported accommodation for their children has been granted."
Full Story: http://northern-district-times.whereilive.com.au/news/story/welcome-home-funding/
Update: 21st June, 2011
Friendly to the Extreme:
Meet Kids and Adults With Williams Syndrome
From ABC News:
"Williams Syndrome is a rare genetic condition -- so rare, in fact, that few people have ever heard of it. Of about 7,500 newborns, only one will have it. But that one, should you ever meet him or her, will likely have a personality of unforgettable ebullience and warmth. It is the type of personality seen only occasionally beyond the world of Williams Syndrome."
Full Story: http://abcnews.go.com/Health/friendly-extreme-meet-kids-adults-williams-syndrome/story?id=13795416
Learn more about AGSA, Genetic Conditions, or make an enquiry:
66 Albion Street, Surry Hills
New South Wales, Australia, 2010
+ Click for Google Map
Telephone: +61 2 9211 1462 Fax: +61 2 9211 8077
Reg Charity No. CFN: 15481
ABN: 83 594 113 193
Funded by NSW Health
