The 7th International Rare Disease Day will be held on the 28th of February 2014. Rare Disease Day is a worldwide campaign coordinated by European Organisation for Rare Disease (EURODIS), and aims to bring attention to the many aspects of care of people living with a Rare Disease. On and around this day hundreds of patient organisations from more than 70 countries and regions worldwide are planning awareness-raising activities around the slogan “Join Together for Better Care”. We aim to help the World Health Organisation recognise the last day of February as the official Rare Disease Day, and to raise increasing awareness for Rare Diseases worldwide.
At AGSA, as a member of EURODIS we invite you to host you're own event to help celebrate with us on the day. Join us in raising awareness about the work that organisations such as your own are doing, as well as emphasise the need for providing equity in services for those with rare or genetic conditions! More details about AGSA's plans for RDD will be published soon. Please let us know if you are holding an event or activity so we can advertise this online through our website and via email.
Below are some links to resources to help you get started:
Rare Disease Day 2014 Information Pack Available: http://download.rarediseaseday.org.s3.amazonaws.com/infopack2014.pdf
Additional Resources: http://www.rarediseaseday.org/article/get-involved-download-our-communication-materials