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    Support for those affected directly or indirectly by genetic conditions/rare diseases throughout Australasia

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    Support for those affected directly or indirectly by genetic conditions/rare diseases throughout Australasia

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    Support for those affected directly or indirectly by genetic conditions/rare diseases throughout Australasia

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    Making the right connections since 1988

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    Making the right connections since 1988

The Association of Genetic Support of Australasia facilitates support for those affected directly or indirectly by genetic conditions/rare diseases throughout Australasia.

AGSA helps supports familiesWe offer a range of support options such as seminars, sibling workshops, telegroup counselling and family days to facilitate contact with others. AGSA is recognised as a peak body in patient support and collaborates with similar organisations nationally and internationally, AGSA is currently the Acting President of the International Genetic Alliance representing 16 countries around the world.

We have a rare disease register representing over 1200 rare conditions to facilitate contact with others with the same or similar condition. We also have contact information for active support groups.

If you would like further information, please phone us on: +61 2 9211 1462 or use our contact form here.

 

Family Planning NSW Forum for parents and carers of people with intellectual disability

Written by AGSA Administrator on .

sexuality nand relationships forum family planing nsw 2014

Family Planning NSW is excited to announce a forum for parents and carers of people with intellectual disability. Find out how to support your family member’s personal development and sexuality in a positive way.
• Experienced presenters to answer your questions
• Choose from six interactive workshops
• Meet other parents and carers
• Resource bag included
• Family Planning NSW bookshop open

Date: Saturday 6 September 2014

Time: 1.00pm - 5.00pm

Venue: Family Planning NSW
328-336 Liverpool Road
Ashfield NSW 2131

Cost: $50 per person

Includes afternoon tea

The forum will include presentations on:
• Disability and sexuality
• Preparing for puberty
• Relationships and dating
• Supporting positive and safe sexual expression
• Tips for talking about sex and answering tricky questions
• Sexual health
• Books, DVDs and resources

Attend two interactive workshops of your choice including:
• Dating and Intimate Relationships. Liz Dore, Relationships and Private Stuff
• Puberty and Boys. Matthew Parsons, Family Planning NSW
• Becoming a Wonderful Woman. Rosalie Power, Family Planning NSW
• Friendships and Relationships. Liz Dore, Relationships and Private Stuff
• Sex, Safe and Fun. Ee-Lin Chang, Family Planning NSW
• Sex Services for People with Disability. Saul Isbister, Touching Base Inc.
See our website for more information about the workshops

CLICK HERE TO REGISTER and for more information about speakers and workshops

DOWNLOAD THE FLYER HERE

Who should attend?
Parents, foster parents, relatives and other unpaid carers of people with disability are welcome. The forum will address sexuality issues across the lifespan including childhood, adolescence and adulthood.

This forum is not intended for service providers. Please see our website for information regarding professional education for disability workers.

We regret we are unable to provide respite/childcare.

Contact:
Danielle Fehir
Health Promotion
T: 02 8752 4388
E: This email address is being protected from spambots. You need JavaScript enabled to view it.

14th Annual BRCA 1/2 Information Day 12th October 2014

Written by AGSA Administrator on .

An annual information day for those living with BRCA1/ BRCA2 gene faults and their families/support people

When: Sunday, 12th October 2014

Where: Oxford Rooms I & II, Rydges Sydney Central Surry Hills Sydney, 28 Albion Street, Surry Hills NSW 2010

For more information, contact AGSA on (02) 9211 1462

Click here to view a PDF version

BRCA 2014 invite pg 1

BRCA 2014 invite pg 2

Information session on “Lifestyle, Diabetes, Prevention and Treatment” - Thalassaemia Society of NSW

Written by AGSA Administrator on .

Thalassaemia Society of NSW invites you to attend a FREE Information session on “Lifestyle, Diabetes, Prevention and Treatment” a very important subject for not only patients but also the general public.

When: Wednesday 17th September 2014

Where: Burwood RSL Club, 96 Shaftesbury Road, Burwood NSW 2134

Time: Arrival 6:30pm to commence 7pm

Please RSVP by 12th September for catering purposes, please contact
Nancy Lucich
E: This email address is being protected from spambots. You need JavaScript enabled to view it.
T: (02) 9550 4844

information session 2014

Genetic Heart Disease (GHD) Clinic at Royal Prince Alfred Hospital FREE Patient Information Day

Written by AGSA Administrator on .

The Genetic Heart Disease (GHD) Clinic at Royal Prince Alfred Hospital is pleased to welcome you to their first ever PATIENT INFORMATION DAY. Partners, friends and family welcome.

When: Saturday 13 September 2014, 10am – 4pm

Where: Charles Perkins Centre Auditorium, Royal Prince Alfred Hospital, John Hopkins Drive (off Missenden Road) Camperdown NSW

Cost: FREE

Please register by Monday 8 September 2014

To register online and for more information visit www.ghdpatientday2014.eventbrite.com.au 

For more information contact:
Laura Yeates ph: 02 9565 6187 This email address is being protected from spambots. You need JavaScript enabled to view it.

 

GHD Patient info day 2014

About AGSA

agsa-about-us

AGSA will endeavour to facilitate contact with another family/individual affected by the same, or similar condition, and/or provide information about an overseas support group.

AGSA has been Making the Right Connections since 1988.

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Genetic Conditions

agsa-genetic-conditions

We have contact and support group details for hundreds of genetic conditions in our database.

If you cannot find your condition here, or you would like to add a support group to the list, please contact AGSA directly. If you know of a change of contact details for a support group listed here, please contact AGSA so that we can update the website.

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Contact Us

agsa-contact-us

If you have any questions regarding genetic conditions or support groups, please do not hesitate to contact our office at the following address:

66 Albion Street
Surry Hills NSW 2010
Australia

You can also contact us by filling out our online form located here.

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Upcoming Events

Challenging Behaviours Workshops
Thursday August 21, 10:00 AM - 12:00 PM
Annual Williams Syndrome Picnic Day
Sunday August 31, 10:30 AM - 5:00 PM
Genetic Awareness Week Launch
Wednesday September 10, 6:00 PM - 10:00 PM
National Huntington’s Conference, Perth
Thursday September 11, 8:00 AM - 3:00 PM
NSW Public School Starts Term 4
Friday September 19 - All Day

Contact Us

Phone:
+61 2 9211 1462

Fax:
+61 2 9211 8077

Address:
66 Albion Street, Surry Hills
NSW 2010 Australia

Email:
info@agsa-geneticsupport.org.au

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